Completing the next level.

I often get messages from readers asking me how to cope with stress, anger, injustice etc. Those of you familiar with the systems that assess families with disabilities for funding, services and support know how infuriating it is. We are incorrectly assessed on a regular basis, delay tactics are used frequently (eg. You MUST attend [...]

Walking a tightrope

It's only been the last few months where I have really started to take my M.E. seriously (or chronic fatigue syndrome, CFS, whatever you want to call it). Recently the NHS sent me for an assessment, they asked me so many questions about my childhood, habits I had, my teenage years etc. I couldn't see [...]

Dear Son…

Dear son, It's 4am and I'm sat watching you play beautifully with your trains. It's been a really hard 3 weeks for you. We decided to try some medication to see if it would help you sleep better. You had been struggling for so long and we couldn't stand to see you in such emotional [...]