I remember the exact moment I first said to another adult that I thought my son had autism. I was standing in the doorway to our playroom and I was watching kiddo repeatedly smack his head on the floor. Absolutely no idea why. He still wasn't using any verbal language at that point. And that [...]
Month: November 2017
The Story of Great Ormond Street. The Genetics appointment.
It's the evening after our genetics appointment. I'm sat in the bedroom kiddo and I are staying in with the lights out, listening to the gentle purrs of sleep coming from the bed next to me. And I'm a mess. Today's appointment has thrown me into complete and utter turmoil. And I have no idea [...]
Why I’m loud and proud about my anti-depressants.
I often read articles written by people about breaking the stigma of mental health. These articles take courage to write, inviting people into a world of confusion, loss and helplessness. I have so much respect for anyone who writes these articles and has them published. I first wrote an article about mental health when I [...]
The Invisible Man
I write this poem for my amazing husband, whom I couldn't navigate this autism journey without. Dad's are often not seen on the front line. They're fighting a different battle in the background, a financial one mostly. I write this for you hubby so that you know how much kiddo and I appreciate you. We [...]
When I first heard the words “special needs school”…
When someone first said the words "special needs school" I can remember exactly where I was. I was sat on a wooden chair next to our dining table. I felt like the chair had suddenly grown arms, wrapped them around me and was suffocating me. I couldn't breathe. My whole body hurt. As the conversation [...]
Why my child’s progress scared me…
Over the past year, kiddo's development has fluctuated a great deal. For a very long time (and still now if I think about it) it seemed like one step forward and two steps back. But still, he was taking those steps forward and slowly but surely making developmental progress.Now you'd think that every time kiddo [...]
The Story of Great Ormond Street. The Sensory Assessment.
Just like the last part of the Great Ormond Street story, I didn't know how to start writing this blog. So yet again I'm following the words in my heart and not my head to try and tell you all how the kiddo's sensory assessment went. Here we go... I now know that I was [...]
Building our Disney Castle
This morning I was building "Disney castle" for the kiddo for the 19 millionth time. I was getting a bit frustrated to be honest, but he wasn't. He was LOVING it. He watched me build again and again with such focus, such pleasure. What is it about the process of building this castle that he [...]
The story of Great Ormond Street. The Psychiatrist appointment.
For the first time since I started writing, I've been putting off writing this blog. Not because I don't want to write it, but because my brain is so manic and so fragile at the same time I'm struggling to make sense of the last two appointments we have had on our London mission. So [...]
Being “that” special needs mum…
A number of times recently, I have found myself in a rather odd position. Whether I've been in a shop, the school playground, a toddler group, birthday party or a wedding, I just happen to have been the only mum there with a child with additional needs. Now usually this means I'm apologising every two [...]