I’ve been really indecisive about writing this blog, but today have realised that it would almost be hypocritical not to since I am attempting to give a true account of a family raising an autistic child. My husband and I are fully committed to giving our son the very best life possible, where his talents [...]
Category: autism
What it means to truly suffer from chronic sleep deprivation.
Last night i went to bed at 6.30pm. I crawled into bed (literally), realised I had forgotten to put my pjs on, slithered back out and somehow carried out the frustrating task of making sure both my legs weren't in the same trouser leg and that my top wasn't on inside out. I lay there [...]
The ruthless reality of anxiety.
As a mother to a child with disabilities and additional needs I often spend most of my time in “fight mode”. Either services are accusing me of doing something I shouldn’t, or of not doing something I should. Or, even worse in my opinion, the passive aggressive approach of not answering calls or emails and [...]
The bitter sweet importance of grieving.
Grief. If you’ve ever truly felt it you will know that it appears from the tinniest of places, at the most unexpected time, with the full force of a hurricane. Totally unforgiving about what conversation you’re having or what event you might be attending, it destroys it. It takes your heart, mind and body and [...]
Finding the true “experts” on autism.
Over the past few months I have been receiving the richest education in parenting my autistic son. Where? Twitter. How? By talking to autistic adults. The people who are living and breathing autism. The people who have been brought up and raised by neurotypical parents like me. The people who face the consequences of, what [...]
The Story of Great Ormond Street: building a sensory program.
Earlier this week the kiddo and I ventured back to London for a follow up appointment. At the end of last year, we visited various clinics and professionals to get a multi disciplinary assessment done through private healthcare. We were concerned that there were question marks over some of kiddo’s behaviours and challenges that the [...]
What’s on your bedside table?
Every night before bed, I attempt some kind of yoga or meditation. I somehow need to bring myself down to a level of relaxation that will allow me to sleep, no matter how artificial or drug induced that sleep may be. This evening as I was slowly listening to my body breath in and out, I [...]
