This morning I had an appointment with a clinical psychologist. Not for kiddo this time, but for me. It was a very weird sensation turning up to an appointment of this nature for free because the NHS had deemed me worthy of support. Nonetheless, I was extremely grateful. We chatted for a bit, me tripping [...]
I often get messages from readers asking me how to cope with stress, anger, injustice etc. Those of you familiar with the systems that assess families with disabilities for funding, services and support know how infuriating it is. We are incorrectly assessed on a regular basis, delay tactics are used frequently (eg. You MUST attend [...]
Sometimes the hardest days aren't those where our children are driving us to distraction, finding mischief in every corner, breaking things or keeping us awake at all hours of the night. Sometimes the hardest days are the ones where you're not responsible for them, even just for a little while. Your mind isn't in constant [...]
It's only been the last few months where I have really started to take my M.E. seriously (or chronic fatigue syndrome, CFS, whatever you want to call it). Recently the NHS sent me for an assessment, they asked me so many questions about my childhood, habits I had, my teenage years etc. I couldn't see [...]
Dear son, It's 4am and I'm sat watching you play beautifully with your trains. It's been a really hard 3 weeks for you. We decided to try some medication to see if it would help you sleep better. You had been struggling for so long and we couldn't stand to see you in such emotional [...]
One of the questions I get asked the most frequently is, "how did you grieve and come to an acceptance that your child wasn't neurotypical?", or words to that effect. People seem to want to know the answer on how to just "be fine", and they want to know how to get there quickly. All [...]
Starting Monday 20th May, I will be focusing my social media pages on autism in women and girls for a whole two week campaign. "The Unseen Autistic" will tell stories written by autistic women, autistic girls and parents of those who have spent years trying to fight a failing healthcare system. We will be looking [...]
