Yesterday my husband and I talked into the late hours. Our words were full of honesty, harsh truths and acceptance. And there were tears (from me). Oh so many tears. What were we discussing? Our fight with the NHS. Our long, heartfelt and determined fight with the NHS. Yesterday our "relationship" with a number of [...]
When we first started along this long and bumpy autism road, people used to say to me "you just need a diagnosis, then you will feel better". I actually got what they meant, a diagnosis gives you a defined condition, a reason for behaviour etc. But the diagnosis was so so long away. I couldn't [...]
When we first started on this journey of an autism diagnosis I was lonely. So lonely my insides hurt. I burned with longing for a friendship group with whom I had something (anything) in common. As a person with a history of depression and anxiety, loneliness has always been my biggest fear. Nothing could be [...]
I read a fabulous blog just now by Her View From Home. It talked about why mums stay up so late even when they are exhausted. Why? Because we need time to ourselves, time to think about things other than being a parent. Or in my case, a carer too.It highlighted the non stop nature [...]
Recently I've been concentrating on kiddo's sleep patterns on my blog. Or lack of anyway. I've frequently been suffering from nights where I have managed 3 or less hours sleep. Now I see other people's posts about their kids and their lack of sleep also and it made me think. Why do I struggle so [...]
I got scared this morning mummy, The world was in my face, Everything was spinning, And I had lost my place. I was frightened this morning mummy, I didn't know what to do, But please don't think for one second, It was anything to do with you. I was terrified this morning mummy, Round the [...]
So I've been thinking about the C word recently. Christmas (what did you think I meant?). I've always done my shopping earlier than others, but since kiddo came along I've started even earlier as I never know when a particularly tough phase of behaviour may begin, leaving any free timeI have at the mercy of [...]
Yep, it's that time of year. The time I dread as it slowly approaches and swallows me up with its dark mornings and cosy nights (which I actually love). Autumn is starting to show its face, and whilst it's actually my favourite season, I can't say I'm happy about it. Why? Because colder and wetter [...]
It's been a few days since our epic day trip to London. I have deliberately waited before writing our story as I wanted to make sure the adrenaline had subsided before I put my thoughts down on to paper (or screen). Because that's what I spent the whole day functioning on. Adrenaline. And here's why... [...]
When it comes to a child diagnosed with autism you often hear about communication difficulties, perhaps a lack of empathy (which is mostly complete nonsense and a stereotypical viewpoint, but hey ho) and maybe sensory difficulties, such as finding even the most minor sound too loud. But do you know what doesn't get discussed that [...]
The Autism & ADHD Diaries 