I felt every one of these words. A powerful blog from Life with a Livewire. I used to have a Fitbit, and yes my heart rate was higher when out and about with kiddo. Not because of him, but because of ignorant parents. I dont wear it anymore.

Life with a Livewire

I’ve had a break from blogging and I’m afraid my first blog back isn’t a very light one but it is what’s on my mind (I wrote it in my head at 3 this morning) so here we go. The next will be a proper update on our gorgeous Taz, I promise.

Seizures aside, one of the most painful elements of Taz’s disability is her challenging behaviour. Less euphemistically: when she hits, pulls hair, scratches or (occasionally) bites others. This is a sensitive topic and an issue not talked about enough. I know this from the reactions we get (the most painful part) which tear through me, causing pain in very different ways.

Like many children and adults with a learning disability, Taz can express ‘violent or challenging’ behavior. Most commonly this is her lashing out to those she is closest to for usually predictable reasons (someone in her space…

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What does parent-carer burnout look like?

We hear the word "burnout" a lot in our society. We live a fast paced, technology driven, achievement based life style and often it gets the better of people. We become tired and run down, eventually leading to mental and physical exhaustion, or burnout. There's a very stereotypical view of what burnout looks like. Sleeping [...]