This is a problem I have had since entering the kiddo into the additional needs healthcare system. All the professionals are so keen to concentrate on "the positive". "Let's look at what he can do" they say, whilst I'm desperately trying to get across what he can't. Now at face value this would seem a [...]
Month: September 2017
The true cost of being a full time carer
14 months ago I made the agonising decision to close down my childminding business and care for kiddo full time. His needs had clearly outgrown what I was able to provide him with, which is what I would consider a typical amount of attention any child would need or deserve in their early years. The [...]
Why “labels” absolutely do matter.
I went for an appointment with kiddo to see the specialist physio over the summer. I've been observing signs of dyspraxia for some time, and kiddo's injury rate has been escalating in a chronic fashion. While I was there I had the luxury of a one to one adult conversation with her about possible causes [...]
The truth behind closed doors…
I thought I was too tired to write today. But as I lie on my bed with the kiddo in the next room I realised that this would be my only outlet. My only way of coming to terms with the behaviour I have had to deal with this afternoon. Kiddo went back to school [...]
T’was the night before school.
A powerful poem from “Our Autism Blog” on the stress a family with Autism feel the night before the new school term starts. We are thinking of you and every other family out there going through this this week. Much love xx
T’was the night before school in Our Autism house,
Anxiety was affecting everyone, even my girls toy mouse,
The school clothes are too itchy, she won’t let me near her hair,
She says she’s not going, that “it isn’t fair,”
Then what to my listening ears do I hear?
A couple of swear words loaded with fear,
Then silence, then stimming, then “I feel sick,”
I knew we must stop talking about school, and quick,
Then more rapid than eagles, the meltdown came,
She lost all control, wouldn’t answer her name,
I watched and I waited, not sure what to do,
My anxiety rising, and my husbands too,
Then everything stopped, not one little sound,
I was hoping a new wave of calm had been found,
But the tooth questions started, a sure sign she’s scared,
6 weeks was not enough to get her prepared,
I wish I could place…
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An open letter to those I lost along the way…
I was browsing Facebook at 2am. Kiddo had been awake since midnight again. He insisted that I lie in his bed with him and since I couldn't sleep through the sharp kicks into my ribs (shouldn't that end with pregnancy?!) I thought I may as well attempt to connect with the outside world. As I [...]
Do not breathe under water…
I saw a picture of this sign the other day. "Wow!" I thought. What an utterly useless and patronising sign. The person writing that is assuming that you haven't tried to hold your breath under water before when swimming, and that you clearly don't hold the intelligence to work out for yourself that it's a [...]
Surviving the school playground…
Over the years I have read many blogs from mummy's trying to navigate their way through the hazardous path that is parenthood. One thing that always struck me were the blogs explaining just how much of a cut throat environment the school playground really is. And I don't mean the children here, I mean the [...]
The day I lost Thomas…
Yesterday was a really difficult day for me. I was devastated at my careless parenting act, my irresponsible nonchalant attitude to safeguarding the one thing my child treasures the most. His beloved Thomas the Tank Engine train. We had gone to a soft play in the afternoon to run off some of the energy that [...]