A nice family weekend. Or is it?

I've spent most of this sunny weekend pushing an all too familiar feeling to the pit of my stomach, where I can almost pretend it isn't there. But not quite... It's hot. Bloody hot. And whilst the rest of the world may laugh at us Britts (understandably), we just aren't used to this weather. Especially [...]

The day we met a sleep neurologist.

It was a familiar feeling yesterday morning as I packed up every bag we had in the house with food, toys, electronic toys, nappies, clothes.... Unlike most people, we can't simply pop to the nearest shop to pick up something we have forgotten for kiddo. His nappies aren't available in shops and new toys and [...]

Finding our forever friend: The transition

Last week I made the journey I had been waiting for for almost a year. I was off to collect our new autism assistance dog, Monty. I was filled with excitement, nerves and apprehension. What if he didn't like me? What if he didn't respond to my commands? We had all been waiting for him [...]

The hardest decision I have ever had to make…

I’ve been really indecisive about writing this blog, but today have realised that it would almost be hypocritical not to since I am attempting to give a true account of a family raising an autistic child. My husband and I are fully committed to giving our son the very best life possible, where his talents [...]

What it means to truly suffer from chronic sleep deprivation.

Last night i went to bed at 6.30pm. I crawled into bed (literally), realised I had forgotten to put my pjs on, slithered back out and somehow carried out the frustrating task of making sure both my legs weren't in the same trouser leg and that my top wasn't on inside out. I lay there [...]

The ruthless reality of anxiety.

As a mother to a child with disabilities and additional needs I often spend most of my time in “fight mode”. Either services are accusing me of doing something I shouldn’t, or of not doing something I should. Or, even worse in my opinion, the passive aggressive approach of not answering calls or emails and [...]

The bitter sweet importance of grieving.

Grief. If you’ve ever truly felt it you will know that it appears from the tinniest of places, at the most unexpected time, with the full force of a hurricane. Totally unforgiving about what conversation you’re having or what event you might be attending, it destroys it. It takes your heart, mind and body and [...]

Finding the true “experts” on autism.

Over the past few months I have been receiving the richest education in parenting my autistic son. Where? Twitter. How? By talking to autistic adults. The people who are living and breathing autism. The people who have been brought up and raised by neurotypical parents like me. The people who face the consequences of, what [...]