This morning I'm suffering of a build up of what I call "inner stress". Everyday for the last 2 weeks, the transition of school drop off has been really hard for kiddo. Once he is there he loves it! But he finds most transitions extremely stressful. Over the years I have learnt how to cover [...]
When I first met the Clinical Psychologist
This morning I had an appointment with a clinical psychologist. Not for kiddo this time, but for me. It was a very weird sensation turning up to an appointment of this nature for free because the NHS had deemed me worthy of support. Nonetheless, I was extremely grateful. We chatted for a bit, me tripping [...]
Completing the next level.
I often get messages from readers asking me how to cope with stress, anger, injustice etc. Those of you familiar with the systems that assess families with disabilities for funding, services and support know how infuriating it is. We are incorrectly assessed on a regular basis, delay tactics are used frequently (eg. You MUST attend [...]
When the noise of daily life finally dies down…
Sometimes the hardest days aren't those where our children are driving us to distraction, finding mischief in every corner, breaking things or keeping us awake at all hours of the night. Sometimes the hardest days are the ones where you're not responsible for them, even just for a little while. Your mind isn't in constant [...]
Walking a tightrope
It's only been the last few months where I have really started to take my M.E. seriously (or chronic fatigue syndrome, CFS, whatever you want to call it). Recently the NHS sent me for an assessment, they asked me so many questions about my childhood, habits I had, my teenage years etc. I couldn't see [...]
Dear Son…
Dear son, It's 4am and I'm sat watching you play beautifully with your trains. It's been a really hard 3 weeks for you. We decided to try some medication to see if it would help you sleep better. You had been struggling for so long and we couldn't stand to see you in such emotional [...]
The journey to acceptance
One of the questions I get asked the most frequently is, "how did you grieve and come to an acceptance that your child wasn't neurotypical?", or words to that effect. People seem to want to know the answer on how to just "be fine", and they want to know how to get there quickly. All [...]
