As a mother to a child with disabilities and additional needs I often spend most of my time in “fight mode”. Either services are accusing me of doing something I shouldn’t, or of not doing something I should. Or, even worse in my opinion, the passive aggressive approach of not answering calls or emails and [...]
The bitter sweet importance of grieving.
Grief. If you’ve ever truly felt it you will know that it appears from the tinniest of places, at the most unexpected time, with the full force of a hurricane. Totally unforgiving about what conversation you’re having or what event you might be attending, it destroys it. It takes your heart, mind and body and [...]
Finding the true “experts” on autism.
Over the past few months I have been receiving the richest education in parenting my autistic son. Where? Twitter. How? By talking to autistic adults. The people who are living and breathing autism. The people who have been brought up and raised by neurotypical parents like me. The people who face the consequences of, what [...]
The Story of Great Ormond Street: building a sensory program.
Earlier this week the kiddo and I ventured back to London for a follow up appointment. At the end of last year, we visited various clinics and professionals to get a multi disciplinary assessment done through private healthcare. We were concerned that there were question marks over some of kiddo’s behaviours and challenges that the [...]
What’s on your bedside table?
Every night before bed, I attempt some kind of yoga or meditation. I somehow need to bring myself down to a level of relaxation that will allow me to sleep, no matter how artificial or drug induced that sleep may be. This evening as I was slowly listening to my body breath in and out, I [...]
The Power of Solitude
I’ve escaped today. Not sure what I’ve escaped from exactly, but I’m far away from anyone I know and anything I have to do. I’ve found a secluded spot in a cafe over looking the river and have deliberately chosen the smallest table facing away from the rest of the room. I want to be [...]
Why I absolutely do NOT hate Autism.
Over the past couple of years I’ve been hooked on reading blogs from parents who just get it. They’ve been there. And guess what? They hate autism. And they’re not afraid to shout about that fact. To many people it makes these writers seem brave. Someone who speaks the “truth”, but when it comes to [...]
